ACE Study

The ACE Study on adverse childhood experiences, childhood trauma and invisible substitute children

The ACE Study on adverse childhood experiences, childhood trauma and invisible substitute children

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ACE test & surrogate child syndrome: Recognising common adverse childhood experiences, neglect and trauma – consequences for mental health & physical health. A supplementary online questionnaire on trauma caused by surrogate child syndrome.

ACE test – a questionnaire: on the significance of personal ACE scores, adverse childhood experiences, childhood trauma and "replacement children"

The ACE test is a tool for assessing adverse childhood experiences that can have long-term effects on health and well-being in adulthood. These experiences, also known as Adverse Childhood Experiences, include various forms of abuse, neglect and traumatic events that a child experiences during their development. The ACE test helps to understand the connection between these childhood traumas and later health problems.

Introduction to the ACE test

What are Adverse Childhood Experiences?

Adverse Childhood Experiences, or ACEs for short, are stressful childhood experiences that can have a profound impact on a child's development. These traumas include various stressful situations, such as:

·         Physical and psychological abuse, and sexual abuse.

·         Neglect which can also manifest itself physically and psychologically.

·         Experiencing violence in the family, addiction problems or mental illness of a parent, or parental divorce.

A questionnaire to determine one's personal ACE score helps to identify whether such experiences have occurred. The more trauma experienced in childhood, the higher the ACE score, which correlates with an increased risk of various health problems in adulthood.

The significance of the ACE test

The ACE test is of great importance because it shows the connection between childhood trauma and long-term health effects. The ACE study showed that people with a high ACE score have a significantly increased risk of depression, anxiety disorders, addiction, heart disease, cancer and other mental illnesses. Knowing your personal ACE score can help you identify risk factors early on and take preventive measures to mitigate them. The ACE test is not a diagnostic tool, but rather a screening tool that helps identify individuals at increased risk and encourages them to seek professional help. It is not intended to be used for self-diagnosis or to conjure up scenarios, but to highlight the link between adverse childhood experiences and long-term effects and, if necessary, to seek medical advice.

Overview of the ACE study

The ACE study, conducted by Felitti and the Centres for Disease Control, was a groundbreaking investigation that examined the impact of Adverse Childhood Experiences on the later health and well-being of adults. The results of the ACE study revealed a clear correlation between the number of childhood traumas experienced and the risk of various health issues in adulthood. The study included over 17,000 participants and showed that individuals with an ACE score of four or more had a significantly higher risk of chronic disease, mental health problems and premature death. The findings of the ACE Study have led to a better understanding of the long-term effects of childhood trauma and have encouraged the development of prevention and intervention programmes aimed at reducing adverse childhood experiences and strengthening the resilience of children and families.

Results of the ACE study

Statistical data and findings

The results of the ACE study provided comprehensive statistical data demonstrating the link between adverse childhood experiences and various negative health outcomes in adulthood. The study showed that adverse childhood experiences such as abuse, neglect and a dysfunctional home environment are common. About two-thirds of study participants reported experiencing at least one childhood trauma, and nearly 13% had four or more adverse childhood experiences. The results of the ACE study showed a clear link between the number of childhood traumas suffered and the risk of various health problems such as depression, anxiety disorders, addiction, heart disease and cancer in adulthood. These statistical data underscore the long-term effects of stressful childhood experiences on mental and physical health.

Correlation between ACE score and health

The ACE score, determined by the ACE test, is an indicator of the number of adverse childhood experiences an individual has experienced. A higher ACE score is strongly correlated with an increased risk of various health problems in adulthood. The ACE study showed that individuals with an ACE score of four or more have a significantly higher risk of depression, anxiety disorders, addiction, heart disease, cancer, diabetes and other chronic diseases. Similarly, a high ACE score is associated with an increased risk of risky behaviours such as smoking, alcohol abuse and drug use, as well as an increased risk of violence and suicidal tendencies. The link between ACE scores and health underscores the importance of preventing adverse childhood experiences and intervening early to mitigate long-term health consequences. A questionnaire can be used to determine an individual's ACE score.

Long-term consequences of childhood trauma

Childhood trauma caused by adverse childhood experiences can have long-term consequences for a person's mental and physical health as well as their social and emotional well-being. The results of the ACE study have shown that traumatic experiences in childhood can impair brain development, weaken the immune system, and increase the risk of chronic diseases. People who have experienced trauma in childhood are more likely to have relationship problems, difficulty regulating their emotions, and an increased risk of mental health conditions such as depression and anxiety disorders. The long-term consequences of childhood trauma can also affect education, career, and quality of life. It is therefore crucial to develop strategies for preventing adverse childhood experiences and to offer early intervention measures to minimise the negative effects of childhood trauma and strengthen the resilience of children and families. Stressful childhood experiences should therefore be taken seriously and discussed with a doctor.

The ten types of adverse childhood experiences

The ACE test covers ten categories of adverse childhood experiences (ACE) that are considered particularly stressful. Studies show that the presence of one or more of these ACEs significantly increases the risk of health problems in adulthood. The ACE score quantifies the number of these ACEs and serves as an indicator of potential risk.

Category

Brief description

Physical abuse

A parent or other adult in the household has repeatedly grabbed, hit or thrown objects at the child, causing marks or injuries.

Sexual abuse

An adult or someone significantly older has forced the child to engage in sexual touching, or oral, vaginal or anal sexual intercourse has taken place or been attempted.

Emotional abuse

The child was frequently insulted, belittled or threatened, causing them to fear physical harm.

Physical neglect

There was a lack of adequate food, clean clothing or medical care, or the parents were too drunk or intoxicated to care.

Emotional neglect

The child felt unloved or unimportant in the family; there was a lack of emotional closeness and mutual support.

Domestic violence

The mother or stepmother was frequently beaten, kicked, had objects thrown at her or was threatened with weapons.

Addiction in the family

The child lived with someone who had alcohol problems or abused other drugs.

Mental illness/suicide attempts in the family

A member of the household suffered from depression or another mental illness or attempted suicide.

Separation or divorce of parents

The parents were separated or divorced.

Imprisonment of a family member

A member of the household was in prison.

 

These ten categories form the basis of the ACE test. One point is awarded for each confirmed experience; the total is the ACE score, which serves as an indicator of future health risk.

Identifying these specific types of adverse childhood experiences is crucial for the development of targeted prevention and intervention programmes.

How is the personal ACE score determined?

The personal ACE score is determined using a questionnaire covering the ten categories of adverse childhood experiences. This questionnaire lists various forms of abuse, neglect and dysfunctional household conditions. Participants indicate whether they experienced these before the age of 18. Each confirmed adverse childhood experience is counted, and the sum is the ACE score.

ACE score

Meaning

0-10

A higher score indicates a greater number of traumatic experiences.

 

The questionnaire is a simple but effective tool for quantifying the extent of childhood trauma and understanding the link between childhood trauma and later health problems.

Interpretation of the ACE score

Interpreting the ACE score is crucial to understanding an individual's risk of long-term health consequences. An ACE score of 0 means that none of the adverse childhood experiences surveyed were reported. In contrast, a score of 4 or more is considered high and is associated with a significantly increased risk of various mental illnesses and physical health problems in adulthood. The results of the ACE study have shown that even a score of 1 or 2 can increase the risk of specific health problems. It is important to emphasise that the ACE score is not a deterministic measure, but rather an indicator of potential danger. A high ACE score does not necessarily mean that a person will inevitably develop health problems. Still, it does underscore the need to take preventive measures and seek professional help to mitigate the potential long-term effects of childhood trauma.

Preparing for the ACE test

Preparation for the ACE test is minimal, as it is a self-assessment questionnaire. However, it is crucial to be aware that answering the questions can be emotionally stressful, as they may bring back traumatic memories. Before taking the test, it is advisable to find a safe and secure space where you feel comfortable and relaxed. It may also be helpful to seek support in advance from a trusted friend, family member, or therapist to discuss the experiences that the test may uncover. The ACE test is not a diagnostic tool, but rather a tool for self-reflection and raising awareness of the potential impact of Adverse Childhood Experiences on one's health and well-being. It is also important to note that the ACE test is not intended for self-diagnosis or to diagnose a condition, but rather to highlight the connection between Adverse Childhood Experiences and their long-term effects, and, if necessary, to consult a doctor.

The significance of your personal ACE score: ACE score and subsequent health effects

The results of the ACE study have demonstrated a clear relationship between ACE scores and various health outcomes in adulthood. A higher ACE score is associated with an increased risk of depression, anxiety disorders, addiction, heart disease, cancer, diabetes and chronic obstructive pulmonary disease. Furthermore, it has been found that people with a high ACE score are at greater risk of engaging in risky behaviour such as smoking, alcohol abuse, drug use and unprotected sex. They are also at greater risk of social and emotional problems such as relationship difficulties, unemployment and poverty. The link between ACE scores and health highlights the importance of preventing adverse childhood experiences and early intervention to mitigate the long-term effects of childhood trauma and improve the quality of life of those affected. It is therefore vital to discuss adverse childhood experiences with a doctor.

Consequences of adverse childhood experiences

Mental and physical health

The long-term consequences of stressful childhood experiences, also known as adverse childhood experiences, extend deep into the mental and physical health of an adult. The ACE study showed that a high ACE score, as determined by the ACE test, significantly increases the risk of depression, anxiety disorders and other mental illnesses in adulthood. Physically, childhood trauma can weaken the immune system and lead to an increased risk of chronic diseases such as heart disease, cancer and diabetes. Children who have experienced abuse or neglect often develop unhealthy coping mechanisms that further impair their health in the long term. It is essential to understand this link between childhood trauma and health problems to take preventive measures early on and mitigate the long-term effects of childhood trauma. Therefore, if adverse childhood experiences are present, it is essential to consult a doctor.

Social impact of childhood trauma

The social impact of childhood trauma is significant and far-reaching. People who have experienced adverse childhood experiences are at higher risk for social problems such as unemployment, poverty and crime. The ACE study showed that a high ACE score is associated with an increased risk of risky behaviour such as substance abuse and violence. These problems not only burden the individuals affected but also society as a whole. The increased need for social services, healthcare and law enforcement leads to significant financial burdens. It is therefore crucial to invest in prevention and intervention programmes that aim to reduce adverse childhood experiences and strengthen the resilience of children and families. By reducing the incidence of adverse childhood experiences, long-term social costs can be mitigated, and the well-being of all individuals can be enhanced. Here, too, it is important to consult a doctor.

Strategies for coping and healing

There are various strategies for coping with and healing from the long-term effects of childhood trauma. One important strategy is psychotherapy, particularly trauma-focused therapeutic approaches such as EMDR or cognitive behavioural therapy. These forms of treatment help those affected to process their traumatic experiences and develop healthy coping mechanisms. Self-help groups and supportive relationships can also play a crucial role in the healing process. Relaxation techniques, mindfulness exercises and physical activity can also help to reduce stress and improve emotional well-being. It is crucial that those affected seek professional help and actively manage their mental and physical health. The ACE test can be a first step in recognising the extent of the stress caused by childhood trauma and beginning the path to healing. If adverse childhood experiences and a higher ACE score are present, consulting a doctor is recommended.

Replacement child syndrome – childhood trauma caused by unresolved grief in parents

Replacement child syndrome occurs when a child is expected to take on the role of a deceased sibling. However, it is not simply the position in the sibling hierarchy or the child's name that is decisive, but rather the unresolved grief within the family. The syndrome can affect any child, older or younger, if the mother or father is unable to cope with the loss of a child or another profound loss. The emotional absence of the caregiver (described by André Green as "dead mother" or "white grief") leaves an inner "hole" in the child and makes it challenging to develop a stable sense of self-esteem. The consequences are identity problems, fear of rejection and difficulties in forming healthy relationships.

Definition and characteristics of replacement child syndrome

Replacement child syndrome describes a specific form of childhood trauma in which a child unconsciously takes on the role of a deceased or otherwise lost sibling or other important caregiver. This phenomenon can lead to profound identity problems and a distorted self-image. Typical characteristics include a strong sense of responsibility for the parents' happiness, a feeling of not being able to meet the parents' expectations, and feelings of guilt when one's own needs are prioritised over those of the family. Those affected often try to fulfil the unfulfilled dreams or wishes of the deceased child, which can lead to considerable psychological stress. The frequently cited identity disorders are not so much in the foreground, because it is the parents who fail to distinguish between the deceased and living siblings. Only when the identity transfer is constantly pressured onto a child by parents trapped in their grief does the living sibling's individuality come under pressure.

Family dynamics in replacement child syndrome

Several typical dynamics can be described in families with unresolved grief:

1.       Overprotection (the "shackled child") – Parents are overly anxious and restrict the child's independence to ensure that nothing happens to them, as happened to their deceased sibling.

2.       Expectation overload (the 'resurrected child') – unfulfilled hopes and the desire to replace the deceased sibling are projected onto the child. This can be constantly held against the child or conveyed as silent disappointment, as they can never live up to expectations.

3.       Neglect (the 'enchanted child') – parents withdraw emotionally from their child. The child becomes emotionally isolated and lives as if under a spell.

4.       Conflictual dynamics (the "healing child") – the child becomes the bearer of the grieving parents' wishes for healing, or a scapegoat and mediator, and gets caught between the fronts.

5.       Ambivalent dynamics (the "double child") – alternating closeness and distance confuse the child and prevent stable bonds from forming.

6.       Survivor guilt (the 'unwanted child') – the child is subtly or openly told that they have undeservedly taken the place of a deceased sibling and are therefore unlovable.

These patterns show that replacement child syndrome is based on unresolved grief and does not depend on birth order at all.

The connection between childhood trauma and replacement child syndrome

Childhood trauma and replacement child syndrome are closely linked. Replacement child syndrome itself is a form of adverse childhood experience, as it leads to significant psychological stress and self-esteem issues. In addition, other traumatic childhood experiences, such as abuse, neglect or the loss of a parent, increase the risk of developing replacement child syndrome. If a child grows up in a family where a loss has not been properly mourned or where unspoken expectations are placed on them, they will easily assume the role of the replacement child. Dealing with replacement child syndrome, therefore, requires a comprehensive review of the family history and the underlying trauma. Here, too, the more trauma there is in childhood, the more critical it is to seek professional help and show adverse childhood experiences to a doctor.

Diagnostic tool for replacement child syndrome

To recognise signs of replacement child syndrome, a self-test based on the criteria of Praxis Psychologie Berlin can be helpful. However, such a questionnaire is not a diagnostic tool for determining the personal extent of the syndrome, but rather a first step towards self-reflection and awareness of possible problems. A positive self-test should serve as an impetus to seek professional help to work through the underlying trauma and family dynamics and develop a healthy self-image. The ACE test can also help identify further adverse childhood experiences.

ACE test for replacement child syndrome – self-check

The following self-test is not a psychological diagnostic tool, but rather a guide for people who wonder whether they are suffering from the consequences of replacement child syndrome and stressful childhood experiences. For each question, note whether you answer yes to the statement. At the end, count the number of questions you answered yes to – the higher the number, the greater the impact of unresolved grief or other ACEs on your life could be. If the score is high, it is advisable to seek professional help (e.g. psychotherapy).

Question

Yes/No

1. As a child, did you often feel responsible for your parents' happiness and emotional state?

 

2. Did you have to meet your parents' expectations or take on their unfulfilled dreams to gain their approval?

 

3. Did you experience your mother or father as emotionally absent ("numb") after a loss, and did this make you feel emotionally alone?

 

4. Were you overprotected, limiting your independence?

 

5. Conversely, did you experience neglect, where your emotional needs were hardly taken into account?

 

6. Did you feel that your parents projected the characteristics of a deceased child onto you or frequently compared you to a deceased/absent sibling?

 

7. Did you often have to mediate disputes, or were you used as a "scapegoat" for family conflicts?

 

8. Do your relationship experiences fluctuate between closeness and sudden rejection, preventing you from building stable, trusting relationships?

 

9. Do you feel guilty for being 'alive' while someone else (e.g. a sibling) has died?

 

10. Do you have symptoms of traumatic stress (e.g. hyperarousal, anxiety, self-deprecation) or a high ACE score as measured by the official ACE test?

 

 

Self-test evaluation

0–2 affirmative answers: There is little evidence of replacement child syndrome. Individual experiences may still have been stressful; pay attention to your well-being.

3–5 yes answers: possible signs of unresolved grief in the family. Counselling can help to clarify the connections.

6 or more affirmative answers: strong indications of problematic family dynamics and the stresses of replacement child syndrome. Professional support from therapists is recommended. If you also have a high ACE score, the risk of long-term health consequences increases.

Dealing with stressful childhood experiences

Childhood trauma and unresolved grief are stressful, but they do not have to determine your entire life.

Therapy and grief work for parents help to change family dynamics and support the child in their identity development.

Trauma-focused psychotherapeutic methods help to process memories and change inner patterns.

Self-help groups, mindfulness-based methods and physical activities can provide additional support.

Anyone who recognises themselves in the role of a surrogate child should work through their family history with support and learn to recognise their own needs.

The ACE test and the self-check described above serve as tools for recognising stressful connections and taking the first step towards healing. Important: If traumatic stress is suspected, expert advice from a doctor or psychotherapist is always advisable.


RELATED ARTICLES:

Childhood trauma (cPTSD): free ACE test online

Childhood trauma: replacement child syndrome — correcting an error

Toxic shame in replacement children: Therapeutic approaches

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Psychologie Berlin

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E-Mail: info@praxis-psychologie-berlin.de

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